Recipes and the daily life of one mom who faces the challenges of having a household filled with kids, each with special needs. Share your comments about gluten/wheat-free, soy-free, dairy-free, nut-free, egg free diets, asthma, allergies and autism.

Tuesday, November 10, 2009

The Holidays!

It has been so long since I have sat down to write. I seem to reflect during the holidays and always strive to make each one special. During Halloween the kids were ill but we made the best of it. We had a very nice and creepy party with just our family , Mom, Dad and kids. At times it weighs heavy on my mind that it is rare to have extended family over for the holidays. I wanted to give my children some of the treats I experienced as a child. Walking in the door getting smothered with hugs and kisses, playing with my cousins, smelling raisin sauce, turkey or blueberry pie cooking. My holidays as a child were set, routined and consistent. There were no divorces. I had the privilege of knowing my Grandparents and Great Grandparents rather well. The children's husband and wives (in -laws) were permanent, they were like one of the kids. In fact at one of my family Christmas they all use to gather around the table before leaving to figure out the next years Christmas. I believe my grandparents made a significant impact in my life, my aspirations , attitudes and dreams. Attending collage was assumed in my mind because my Grandmother was a nurse and my great Grandmother a teacher. Education was presented as important on both sides. I think my belief in a happy loving family came from them.

I have never believed in the perfect family nor wanted it, white picket fence etc etc etc. I believe that an imaginary image of perfection makes so many miserable and masks the perfection that exsists right where they are, so they never step back enough to look at the whole picture. Creating a life full of drama and never ending emotional battles and decisions. Basically your daily soap opera. Did you ever notice that a fence row of trees never looks imperfect. Are the trees naturally symmetrical, even or perfectly balanced? When you see nature you see it in its full context with the blue sky and clouds behind it, You don't simply see a crooked tree, you see it as part of something larger and it is unmistakably perfect. Your kids funny comments, the annoying thing your husband does that you shake your head at but realize it makes you giggle, the way you try so hard to make something just right and something happens last minute to provide that comic relief that could not have been planned. Knowing not everything has to be on your terms, true love allows this. Knowing that balance does not always mean 50/50 but a fair combination that reaches 100 across the board. It is more then ok to have your own things and contribute a little more in your own way because each person does that and it balances out. We use our strengths to build a stronger whole. Then the surprise of flowers for no reason and Thank yous out of the blue. Call me a simpleton, but those are the images that get you through the rough times and the history you build and work through is what leads to those older couples holding hands traveling together oh so gently.

So as the holidays fast approach it remind me that our extended families live miles and miles away. Holiday travel is expensive and difficult with the kids medical issues. Our family members are also spread out across the US, which makes trips challenging. My husbands parents have been divorced a number of times each and are at opposite ends of the country. My family primarily resides in one state, but issues with my sibling makes visits difficult. I think the kids not having the extended portion of our families around reminds me to make the holidays that much more special for them. There is always lots of creative cooking, decorations, memory building moments ( like our memory book we wright in every Thanksgiving about what each of us is thankful for), reading of stories ( I have read them the original Christmas Carol since they were tiny) , our surprise visit from Santa on Christmas eve, Christmas Eve Service, just time together appreciating who each individual is and our prefect imperfection as individuals. God made us all different for a reason and the holidays are a reason to remember that we are given a gift, our family and friends, and that there is something greater then ourselves and because of that we never have to feel alone. I wish everyone a joyous holiday, lots of good eats and many happy memories. Just remember each day open your eyes a bit wider, take in what you can, give an extra hug and kiss. We will miss all of our family we are unable to visit with this holiday season and wish them a beautiful thanksgiving and Christmas where ever they reside. I hope some of the new recipes I post will help during this holiday season. Happy Holidays to all!

Monday, November 9, 2009

More allergies

Here are some new ingredients I use as staples. My children have been further diagnosed with more food allergies, so we are now wheat, gluten, soy, nut, milk, egg, oat, sunflower, and shellfish free. Some ingredients I have found to be wonderful are the following.

Hemp milk - can't tell the difference in recipes
Gourmet blend of flours from Ener g
Spectrum palm oil shortening
Ener g egg replacer but I more often avoid recipes where egg is called for at all or use a combination of other ingredients.

Thursday, July 17, 2008

Fruity Chicken Kabobs

INGREDIENTS

1 cup lemon juice
2 (8 ounce) cans pineapple chunks, juice reserved
2 teaspoons ground cinnamon
3 skinless, boneless chicken breast halves, cubed
1 cup spectrum shortening or other butter substitute melted
2 tablespoons brown sugar
1 teaspoon ground nutmeg
24 large strawberries
salt and pepper to taste

DIRECTIONS

Mix together in a shallow bowl the lemon juice, juice from pineapple can, salt, pepper and 1/2 of the cinnamon. Place chicken in mixture to marinate in the refrigerator approximately a hour. Heat grill to a medium temperature. In another small bowl combine the melted spectrum shortening or other butter substitute , 1 teaspoon cinnamon, brown sugar and nutmeg. Lightly oil grates. Using metal or soaked wooden skewers arrange chicken, pineapple chunks and strawberries on each stick. Brush kabobs with butter substitute mixture and grill, turning on all sides, strawberries are sizzling and chicken is cooked. Approximately 8 to 10 minutes.

Friday, June 6, 2008

Recent Activities

The storms in Kansas have been a bit scary. Last night the air force base tornado sirens were going off. We very orderly grabbed supplies and headed into the basement. When the sirens stopped and the warning was over, we preceded upstairs to eat dinner. The rain was coming down so hard it actually came in under the front door. While everyone was downstairs I ran upstairs for a second to grab a sweatshirt and some socks for everyone. I stepped out on the front porch for a second and it was so ominous outside. Makes you realize how furious nature can be and how much we are at its mercy. The kids did very well. They were nervous but acted pretty calmly and orderly. My laptop helped keep my third son in the correct area of the basement with the other kids.

We are going to church regularly now and the kids have a three week session of Sunday school, starting this Sunday. I am hoping everyone is well enough to go. All four kids have got a nasty cold. I just came down with it the other day. During this time of year it is very hard to tell how much allergies are complicating this bug. It has been extremely humid here from all the storms and so thick outside. We will just have to wait and see how everyone is feeling on Sunday. Each of my boys will be in their own Sunday school class. The class for my daughter does not start up until fall. I have also applied for my oldest to be in a technology camp this summer. Both of our oldest boys have another session of swim lessons that start up soon. We are wrapping up the school year as well. I have most of the books for my second son already for next year and am starting to get the curriculum together for my oldest and third son for their 2008-2009 year. My daughter is a sponge and is picking up bits of all the curiculium.

My third son is carrying books around with him all day. He asks, "Me read to you?" He means will you read to me, but that is how it is coming out. He is talking so much more and I am so glad to see him taking to books like this. It can only help with his speech. Reading to all of my kids has been a joy and I think it helps in so many ways. With our third boy it is a wonderful way to ask questions and help him with his speech. I know he knows so much, yet can't fully express what he knows, how he feels.. I often think how frustrating that has to be for him. One of those magical little moments is when your child learns something and they share that with you. He is having more and more of those. He is a wonderful little boy.

My daughter is full of energy and such a talker. She imitates so much. She is potty training right now. I have found it is a bit different with girls. She is so particular. She asks for very specific color or prints of things. Everything from her drinking cup to her underwear. She loves rainbows, butterflies, pink and purple. Every time I sit down she imitates the way I sit. She has the sweetest little voice and when she smiles, the world stops spinning and she just glows. She is such a sweet girl. Mind you very determined and particular with a heart of gold.

I am really glad they are getting more involved with things and people in the area. It is a good feeling to start to branch out and get involved. They grow so fast and it is such a privilege to be able to take part and watch the kids growing into such kind hearted individuals. Not a day goes by I don't thank my lucky stars.

Monday, May 26, 2008

On the Grill!

2 Recipes this time around.

I received lot's of requests for a BBQ sauce to go with the Chicken Nugget recipes I sent last time.

Plus, A new treat. Grilled Zucchini

BARBECUE SAUCE

One (6 ounce) can tomato paste
1/4 cup cider vinegar
1/4 cup molasses
1/4 cup brown sugar - packed
2 tablespoons honey
1 cup water
1/2 teaspoon ground cumin
1/2 teaspoon red pepper flakes
1/2 teaspoon black pepper
1 chopped onion
1 teaspoon salt


DIRECTIONS:

Add all ingredients in a saucepan and stir. Over medium heat bring to a boil, then simmer for an hour on low heat, stirring occasionally. This recipe makes approximately 1 1/2 cups of barbecue sauce. This is a wonderful barbecue sauce for your summer time grilling.


GRILLED ZUCCHINI

4 8-oz zucchini, cut lengthwise into halves
1 cup chopped red bell pepper
1 cup chopped onion
2 teaspoons minced garlic
1 medium tomato, seeded, chopped
1 tablespoon fresh basil (or 1 tsp. dried)
15 ounces canned chickpeas or 1 1/2 cups cooked, dry-packaged chickpeas
1/2 teaspoon salt (optional)


DIRECTIONS:

Hollow out zucchini with a sharp knife, leaving 1/4 inch shells, set shells aside. Chop zucchini flesh. In a large non-stick skillet, sauté chopped zucchini, bell pepper, onion and garlic until crisp-tender, about 8 minutes. Add tomato and basil and saute, about 5 minutes. Mash half of the drained and rinsed chickpeas and set aside. Add the chickpeas to side of skillet and mix chickpeas into zucchini mixture.
Spoon mixture into zucchini shells cover and grill, over medium-hot coals. They are done when the zucchini shells are crisp and tender, about 10 to 15 minutes.

Chickpeas can be replaced with pinto or other beans.

Friday, May 9, 2008

HAPPY MOTHER'S DAY!

I just want to say Happy Mother's Day to everyone. I know what I am looking forward to this Mothers Day. My husbands gift of a family picture (Thanks Honey, means a bunch!) and some special one on one time with each of the kids. In the past, I have really enjoyed when each of the kids have picked an activity to do with me. Whether it is us planting a flower that they each pick out, playing a video game, or even making a special desert in the kitchen with them. I am looking forward to our house being filled with activity and maybe a few relaxing moments at the end of the day with my husband! I wish everyone a beautiful Mothers Day filled with many hugs and kisses. Thanks for everything you do!

I had received the following article in the Schafer report yesterday and decided I would post it for Mothers Day.


Happy Mother's Day: Mothers Lie

By Lori Borgman

Expectant mothers waiting for a newborn's arrival say they don't care what sex the baby is. They just want to have ten fingers and ten toes.

Mothers lie.

Every mother wants so much more.
She wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin.
She wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly.

She wants a baby that will roll over, sit up and take those first steps right on schedule (according to the baby development chart on page 57, column two).
Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions.
She wants a kid that can smack the ball out of the park and do toe points that are the envy of the entire ballet class.
Call it greed if you want, but a mother wants what a mother wants.

Some mothers get babies with something more.

Maybe you're one who got a baby with a condition you couldn't pronounce, a spine that didn't fuse, a missing chromosome or a palate that didn't close.
The doctor's words took your breath away.
It was just like the time at recess in the fourth grade when you didn't see the kick ball coming, and it knocked the wind right out of you.

Some of you left the hospital with a healthy bundle, then, months, even years later, took him in for a routine visit, or scheduled him for a checkup, and crashed head first into a brick wall as you bore the brunt of devastating news.
It didn't seem possible.
That didn't run in your family.
Could this really be happening in your lifetime?

There's no such thing as a perfect body.
Everybody will bear something at some time or another.
Maybe the affliction will be apparent to curious eyes, or maybe it will be unseen, quietly treated with trips to the doctor, therapy or surgery.
Mothers of children with disabilities live the limitations with them.

Frankly, I don't know how you do it.
Sometimes you mothers scare me.
How you lift that kid in and out of the wheelchair twenty times a day.
How you monitor tests, track medications, and serve as the gatekeeper to a hundred specialists yammering in your ear.

I wonder how you endure the clichés and the platitudes, the well-intentioned souls explaining how God is at work when you've occasionally questioned if God is on strike.
I even wonder how you endure schmaltzy columns like this one-saluting you, painting you as hero and saint, when you know you're ordinary.
You snap, you bark, you bite.
You didn't volunteer for this, you didn't jump up and down in the motherhood line yelling,
"Choose me, God. Choose me! I've got what it takes."

You're a woman who doesn't have time to step back and put things in perspective, so let me do it for you. From where I sit, you're way ahead of the pack.
You've developed the strength of the draft horse while holding onto the delicacy of a daffodil.
You have a heart that melts like chocolate in a glove box in July, counter-balanced against the stubbornness of an Ozark mule.

You are the mother, advocate and protector of a child with a disability.
You're a neighbor, a friend, a woman I pass at church and my sister-in-law.
You're a wonder.

Monday, May 5, 2008

A Week Goes By!

Last week ended with a recheck on my surgery. I had to be put on an antibiotic. When my OBGYN gave me an exam she found a second lump in my other breast. This Thursday I have to go in for a mammogram and ultra sound. Basically, I have discovered that with what I was originally put through I should have had the mammogram and ultra sound done first. Then have been sedated and had a breast specialist do the surgery. It still has not sealed completely. So , now I am going through this all over again. This has become incredibly frustrating. In all honesty, I just don't have the time to deal with this and go through this. Not to mention having my mind wonder when I find or the doctor finds a lump. These doctors appointments, surgery and tests are simply taking to much time and that is something there never seems to be enough of. My husband has been very supportive and says getting this stuff done is more important. I just worry about him having to take time off work. I will know more on Thursday but the doctor also wondered if the first one was removed all the way so this is really just a mess. She assured me she would send me to a breast specialist to have any further surgery done. I guess the reason I went to my MD with this was we were not planning on our family getting larger so I figured the MD could watch my feminine stuff. Apparently, not the right assumption.

So, it was a rough last half of the week. Saturday was nice. Sunday morning we went to church. It was a very nice service. The boys were all dressed in ties and were perfect gentlemen. My daughter was adorable in a little satin white and rose colored summer dress. My oldest handled it beautifully. My third son started stimming right before service. Fortunately, they had a nursery that you could see right in from the chapel. He really did well and played with a couple other children. My daughter handled the service very nicely for about 30 minutes then I went into the nursery with her for the last 15.

I think for most they walk into a Church and can just pop their kids in the nursery, Sunday school etc etc etc. Not here. Before I let my son stay I had to explain his situations and food allergies and I had to visibly see him in case he got aggressive. Also my daughter being allergic to wheat and soy could simply not be in there without us. Crackers and goldfish were being eaten. Well, you know how kids eat! Anyway, we decided not to put the older kids in Sunday school until we checked the church out and got a feeling for the messages it was teaching. I also have to contact the Sunday school teachers, show them how to use the epi pens explain the situations and allergies. This church has a very nice set up and the pastor seemed to be teaching a very up beat, inclusive, positive message.

On a different subject. My third son constantly walks on the balls of his feet, sensory issue. He can do some damage by doing this so I decide to come up with a little game and try some inventive stuff to help him learn to correct it. You can buy special shoes for it, but I am trying to get him to learn a different behavior and recognize the behavior. Also it is important to recognize he exhibits a behavior because he has a need for that sensory input. So as he walks I kneel down in front of him and scoot backwards as he walks forward. I wrap my hands on his feet and apply some gentle pressure and we say flat feet, flat feet, flat feet HUG. The pressure is what he is getting and it is the stimulus that is causing him to walk like that. He actually does really well with this. He giggles and after a few steps gives me a hug. I think the root of correcting behaviors needs to be based in recognition of the behavior and this has done that. Now I can say, "flat feet, flat feet," and he can correct it himself for short periods of time. Wednesday, I am going to share this little trick with his OT specialist. Maybe it could work for someone else too.

I have to get back to school, but swimming tonight. The boys are really loving the lessons! We have a busy week ahead and lots to do.

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