Recipes and the daily life of one mom who faces the challenges of having a household filled with kids, each with special needs. Share your comments about gluten/wheat-free, soy-free, dairy-free, nut-free, oat-free, sunflower-free, shellfish-free, egg free diets, asthma, allergies and autism.

Monday, May 5, 2008

A Week Goes By!

Last week ended with a recheck on my surgery. I had to be put on an antibiotic. When my OBGYN gave me an exam she found a second lump in my other breast. This Thursday I have to go in for a mammogram and ultra sound. Basically, I have discovered that with what I was originally put through I should have had the mammogram and ultra sound done first. Then have been sedated and had a breast specialist do the surgery. It still has not sealed completely. So , now I am going through this all over again. This has become incredibly frustrating. In all honesty, I just don't have the time to deal with this and go through this. Not to mention having my mind wonder when I find or the doctor finds a lump. These doctors appointments, surgery and tests are simply taking to much time and that is something there never seems to be enough of. My husband has been very supportive and says getting this stuff done is more important. I just worry about him having to take time off work. I will know more on Thursday but the doctor also wondered if the first one was removed all the way so this is really just a mess. She assured me she would send me to a breast specialist to have any further surgery done. I guess the reason I went to my MD with this was we were not planning on our family getting larger so I figured the MD could watch my feminine stuff. Apparently, not the right assumption.

So, it was a rough last half of the week. Saturday was nice. Sunday morning we went to church. It was a very nice service. The boys were all dressed in ties and were perfect gentlemen. My daughter was adorable in a little satin white and rose colored summer dress. My oldest handled it beautifully. My third son started stimming right before service. Fortunately, they had a nursery that you could see right in from the chapel. He really did well and played with a couple other children. My daughter handled the service very nicely for about 30 minutes then I went into the nursery with her for the last 15.

I think for most they walk into a Church and can just pop their kids in the nursery, Sunday school etc etc etc. Not here. Before I let my son stay I had to explain his situations and food allergies and I had to visibly see him in case he got aggressive. Also my daughter being allergic to wheat and soy could simply not be in there without us. Crackers and goldfish were being eaten. Well, you know how kids eat! Anyway, we decided not to put the older kids in Sunday school until we checked the church out and got a feeling for the messages it was teaching. I also have to contact the Sunday school teachers, show them how to use the epi pens explain the situations and allergies. This church has a very nice set up and the pastor seemed to be teaching a very up beat, inclusive, positive message.

On a different subject. My third son constantly walks on the balls of his feet, sensory issue. He can do some damage by doing this so I decide to come up with a little game and try some inventive stuff to help him learn to correct it. You can buy special shoes for it, but I am trying to get him to learn a different behavior and recognize the behavior. Also it is important to recognize he exhibits a behavior because he has a need for that sensory input. So as he walks I kneel down in front of him and scoot backwards as he walks forward. I wrap my hands on his feet and apply some gentle pressure and we say flat feet, flat feet, flat feet HUG. The pressure is what he is getting and it is the stimulus that is causing him to walk like that. He actually does really well with this. He giggles and after a few steps gives me a hug. I think the root of correcting behaviors needs to be based in recognition of the behavior and this has done that. Now I can say, "flat feet, flat feet," and he can correct it himself for short periods of time. Wednesday, I am going to share this little trick with his OT specialist. Maybe it could work for someone else too.

I have to get back to school, but swimming tonight. The boys are really loving the lessons! We have a busy week ahead and lots to do.

1 comments:

smalltowngl said...

I just found your blog today. It's absolutely awesome. I have a 5 years old son with Sensory Processing Disorder. He walks on his toes also. Thanks for sharing your tip to correct that. I'll have to try it and see if it helps.

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