My Autistic son is scheduled for an MRI tomorrow. We took him into his neurologist last Thursday and my husband took of work to meet us there. AT his first neurology visit in Kansas I discussed his eye pain with the doctor and they came to the conclusion it was migraines. I was confident it was not an actual eye problem because I took him to the optomologist, they dialed his eyes and he is seeing 20/20. So I avoided the foods and triggers they told me to etc. To make a long story short it hasn't worked. He is having the eye pain when he wakes up and he has thrown up for no reason in the the morning twice since his last visit. So tomorrow is the MRI and then we take the films straight to the doctor and we will find out on the spot. No waiting, but the fact they are expediting this makes me even more worried about what it could be. We also have found his occipital bone has become increasingly more asymmetrical. The doctor said his skull still has enough give and growth to do that and it could possibly form around something or it could be just him. All this can be caused by some sort of tumor. He is also going to be sedated by IV tomorrow which in itself is enough to make me jump out of my skin. I just pray he does not have any sort of mass or tumor and there are no problems with the sedation.
He is such a love. He would kiss you all day if you let him. He just sparkles. Even on his rough days he is a treasure to behold. He is starting to make so much progress. His comprehension is finally really setting in for somethings and his language use is progressing. He is working so well with his younger sister now, so much better.
When I see our family it feels as if we are a completed puzzle. Each member so unique and beautiful everyone just fits together creating a charming painting. When you see one child walk with his arm around another. When a comical event happens or a group hug takes place. You just pray your masterpiece stays safe and sound unbroken. That is often how I see us. Each member adding so much to each other. Then when things happen you force yourself to hold the image together in your mind, terrified to see those pieces not supported by one another.
So, today I am trying to keep that portrait image whole and in a simple but elegant frame. Praying and giving our little guy all the hugs and kisses I can muster. I am also going to be busy making lunch to take to the hospital and a batch of my sons favorite cookies to eat as soon as he can. It is going to be a long day and I am very worried.
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1 comments:
Hello, my son has autism and headaches. He is 12 years old. About one or two times a month he use to get really bad headaches, and dizzy and then he'd puke and fall asleep because it wore his body out. We found out because of his autism his food doesnt digest well in his intestines and he wasnt going to the bathroom enough. He rarely has headaches now that we took his to a gastorologist for his head aches and things are much better. My son has been on the gf/cf food diet now for 6 years now.
Our family loves french toast but, my son can't eat bread so instead. I put an egg batter in granola instead of bread and he eats it with friut and syrup. It's a nice substitution for a recipe that requires bread.And he drinks rice milk instead of regular milk.
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